StigmaScope
Explore Stigma in the U.S.
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Methodology

Overview

This page describes the data sources, processing decisions, aggregation methods, and modeling assumptions used in StigmaScope. Specifically, StigmaScope combines survey-based stigma measures, structural policy indicators, support service data, published evidence of stigma reduction interventions, and HIV surveillance indicators to help users interpret stigma and HIV-related outcomes across geographic regions.

Individual state profiles

The state profiles contain three tabs: Stigma Impact Model, Support Services, and Stigma Indicators.

Stigma Impact Model

The Stigma Impact Model uses a system dynamics approach to explore how stigma may influence engagement in HIV prevention and care services and impact HIV-related outcomes among men who have sex with men (MSM). System dynamics is a quantitative simulation modeling approach to capture how structures (for example, health systems, societal beliefs) and entities (people at risk of HIV, healthcare providers) interact over time within a system. The model combines stigma-related data from the American Men’s Internet Survey (AMIS)1 with HIV prevention and care indicators from CDC surveillance data.2 The model can be used to explore potential stigma reduction pathways and their impacts on key Ending the HIV Epidemic (EHE) pillars and outcomes. For further information and documentation of this model, please see the Stigma Model Documentation.

AMIS Stigma and Socio-Behavioral Measures

The model visualizes the proportion of participants from AMIS responding “yes” to individual socio- behavioral variables, including the three stigma scales (general social stigma, stigma from family members, anticipated healthcare stigma), healthcare provider disclosure, and risk behavior. For stigma scales, to more finely characterize temporal trends, responses of “yes” are coded as positive evidence of stigma experience only if experienced within the last 6 months.To facilitate accurate trend visualization and cross-state comparisons, this data is grouped into two-year intervals and reweighted across time.

CDC HIV-related Indicators

The model visualizes key epidemiological and service indicators among MSM, specifically:

MSM prescribed Pre-Exposure Prophylaxis, or PrEP
Derived from the CDC surveillance indicator “PrEP coverage and number of persons prescribed.” The number of MSM prescribed PrEP is estimated as 85% of male PrEP users, based on national estimates.

Estimated HIV incidence among MSM
Derived from the CDC surveillance indicator “Estimated HIV incidence,” which is reported by aggregate population at each geographic level. Incidence is estimated by allocating total incidence based on the proportion of new HIV diagnoses attributed to MSM.

Note: This approach assumes that the share of new diagnoses among MSM reflects the share of new infections.

HIV diagnoses among MSM
Taken directly from CDC surveillance indicator: “HIV diagnoses.

Support Services

The Support Services tab categorizes and visualizes data from the National Prevention Information Network (NPIN)3. NPIN allows organizations to self-report the services they provide related to TB, HIV, STIs, and viral Hepatitis care. Organizations listed in the NPIN database were sorted into the following four Support Service categories: Housing and Employment Support, Mental Health Services, Substance Use Disorder Treatment and Prevention, and Sexual Health Services. The services that comprise each category, as specified in the NPIN database, are listed below. On state profile pages, organizations are shown by geographic location within the state map.

Housing and Employment Support

Comprised of organizations that indicate they provide the following service: Housing Opportunities for Persons with AIDS/HOPWA

Mental Health Services

Comprised of organizations that indicate they provide the following service: Support Groups

Substance Use Disorder Treatment and Prevention

Comprised of organizations that indicate they provide the following services:

    • (a) Harm Reduction Services
    • (b) Needle Cleaning, Needle Exchange, or Needle Distribution Services
    • Both types of services (a and b)

Sexual Health Services

HIV & Stigma Prevention and Education

Comprised of organizations that indicate they provide all the following services:

    • PrEP Navigation
    • Drug Purchasing Assistance, including AIDS Drug Purchasing Assistance (ADAP)
    • HIV Test Counseling
    • HIV/AIDS Prevention/Education
    • STI Prevention/Education
    • Condom Distribution

HIV & STI Testing and Treatment Services

Comprised of organizations that indicate they provide all the following services:

    • Chlamydia Test
    • Gonorrhea Test
    • Conventional HIV Test
    • Syphilis Test
    • STI Treatment
    • Doxy PEP

Both

Comprised of organizations that indicate they provide all the services listed under HIV & STI Prevention and Education, and HIV & STI Testing and Treatment Services

Note: On the National Profile Support Services tab, states that did not have organizations that provided both HIV & STI Prevention and Education and HIV & STI Testing and Treatment Services are visually indicated using a hash pattern. Additionally, stigma interventions that occurred in a non-specified region are listed below the Support Services map on the National Profile.

Below the map, peer-reviewed stigma intervention studies conducted in each state are displayed to provide additional context on interventions and strategies for reducing stigma. Studies which met the inclusion criteria of the following systematic review: Stigma mitigation interventions among populations living with HIV and at disproportionate risk of HIV in the United States (registered in the PROSPERO International Prospective Register of Systematic Reviews with the registration of ID: CRD42024528749) are displayed on the Stigma Support tab under the respective state or region in which they were conducted.

Stigma Indicators

The Stigma Indicators tab visualizes stigma data collated from AMIS1 and the Movement Advancement Project (MAP)4,5 to contextualize individual experiences of stigma reported by MSM along with policies indicative of structural stigma.

How Individual Stigma Item Prevalence is Calculated

MSM who complete AMIS are asked to respond to various questions (items), regarding experiences of stigma they may have had over varying time frames (e.g. yes, in the past 12 months; yes, not in the last 12 months). When reporting the data, responses of “yes,” to an individual item, regardless of time frame, are coded as positive evidence of experiencing stigma.

To calculate individual stigma item prevalence, responses of “yes” or “no” to an item are summed, and the proportion of individuals who indicated “yes” to an individual item are calculated. The proportion of individuals who indicated “yes” is displayed by individual item on the Stigma Indicator Tab.

Individual Stigma Items, Scales, & Scores

To describe how different types of stigma persist, validated stigma scales exist to measure distinct experiences of stigma. Each scale consists of multiple individual stigma items that together characterize a specific type of stigma. StigmaScope uses individual stigma items, as can be seen on the Stigma Indicator tab, to calculate scores for the following three scales:

    • General Social Stigma
    • Stigma from Family
    • Anticipated Healthcare Stigma

The General Social Stigma Scale is comprised of individual items that capture experiences of negative treatment, harassment, or physical / sexual violence perpetrated by police or community members in public spaces.6

The Stigma from Family Scale is comprised of individual items that capture experiences of exclusion, discrimination, or rejection perpetrated by family members. 6

The Anticipated Healthcare Stigma Scale is comprised of individual items that capture fear of negative experiences while accessing or engaging with healthcare services that may lead to avoidance of care.6

Note: Further information on the stigma items, scales, and scores can be found on the Center for HIV and Stigma Elimination Strategies (CHIMES) Stigma Measurement Library.

Structural Stigma

Collated from MAP’s HIV Criminalization and Hate Crime legislation pages, this policy data displays active HIV criminalization laws, hate crime data collection, and annual hate crime incidence.

National Stigma Heatmap

The National Stigma Heatmap visualizes scores for the three stigma scales. The scores represent the proportion of AMIS participants that report experiences of stigma across the general social stigma, stigma from family, and anticipated.

General Social Stigma Scale: Experiences or perceptions of negative treatment, harassment, or physical / sexual violence perpetrated by police or community members in public spaces.

Stigma from Family Scale: Experiences of exclusion, discrimination, or rejection perpetrated by family members.

Anticipated Healthcare Stigma Scale: Fear of negative experiences while accessing or engaging with healthcare services that may lead to avoidance of care.

How State-Level Scores are Calculated for the Stigma Scales

Responses of “yes,” across the items that comprise the overall scale, regardless of time frame, are coded as positive evidence of experiencing stigma. For any missing responses, the mean from the respective scale is imputed. Scores are aggregated to calculate state-level proportions.

Note: US States failing to meet a minimum threshold of 30 respondents for a specific item in a given survey year are suppressed and shaded grey.

External Data Sources

American Men’s Internet Survey (AMIS)

Source Description: A cross-sectional, online survey occurring annually since 2013, led by Emory University in partnership with Johns Hopkins University. AMIS aims to capture the demographics, sexual behavior, HIV & STI testing and diagnosis history, PrEP knowledge, interest, and use, use of HIV prevention services, and experiences of MSM in the United States.

Data integrated into:

    • State and National Profile(s) – the Stigma Impact Model (state profiles only), the Stigma Indicators tab
      • Individual Stigma Items
    • National Stigma Heatmap
      • State-Level Stigma Score

Movement Advancement Project (MAP)

Source Description: Collated data from MAP’s HIV Criminalization and Hate Crime legislation pages.

Data integrated into:

    • State and National Profile(s) – Stigma Indicator Tab

National Provider Information Network (NPIN)

Source Description: Aggregated organizational reference and referral service in which organizations can upload information regarding their service provision on HIV/AIDS, viral hepatitis, sexually transmitted diseases, and tuberculosis.

Data integrated into:

    • State and National Profile(s) – the Support Services Tab

Centers for Disease Control and Prevention, or CDC, HIV Surveillance Reports

Source Description: Data compiled annually from multiple national reporting systems, including:

  • National HIV Surveillance System, case-based surveillance
  • IQVIA Real World Data Longitudinal Prescriptions database, prescription data repositories
  • Medical Monitoring Project, national surveys

Data integrated into:

      • State Profiles – Stigma Impact Model

References

    1. American Men’s Internet Survey, AMIS. Retrieved March 2026.
    2. Centers for Disease Control and Prevention. NCHHSTP AtlasPlus. Retrieved March 2026.
    3. Centers for Disease Control and Prevention. (2026). Service Locator. National Prevention Information Network. Retrieved March 11, 2026, from https://npin.cdc.gov/search?content_type=organization
    4. Movement Advancement Project. Hate Crime Laws. Retrieved September 16, 2025.
    5. Movement Advancement Project. HIV Criminalization Laws. Retrieved September 16, 2025.
    6. Augustinavicius, J. L., et al. 2020. “Characterizing Cross-Culturally Relevant Metrics of Stigma Among Men Who Have Sex With Men Across 8 Sub-Saharan African Countries and the United States.” American Journal of Epidemiology, 189(7), 690–697.

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